Knowledge Base / Advocacy
Join our advocacy efforts to make sure your voice is heard
Help Make EDS/HSD/HCTD’s and the Chronic Pain and Mental Health Impacts Matter by writing to your government representative.
Navigating Personal Advocacy
The more patients use a coordinated effort through participation in surveys, petitions, peer support and/or lobbying government officials, the greater probability the ‘collective voice’ can influence those with decision making power Patient Experience / Patient Relations Department (AKA: patient complaint department within all hospitals). Use and KEEP using this department. Keep a file of […]
