Community Participation in Research

The ILC Foundation supports the further study into EDS, HCTD, and Chronic Pain. The following research studies are seeking patient involvement.


Posted April 17, 2024

 

Research Study: Have your say in designing accessible public spaces!

We are looking for people who use wheeled mobility devices to participate in a research study. We want to learn how dimensions of the spaces you use can be improved to make public spaces more accessible to navigate. Findings from this study will be used to develop building policy and design guides to improve accessibility in public spaces for Canadians who use wheeled mobility devices.

Participants must:

  • Be at least 18 years old
  • Live in Canada
  • Use a wheeled mobility device (such as a manual wheelchair, powered wheelchair, or mobility scooter) during everyday functional activities

Participants will be asked to attend a single session (~3 hours) and use their wheeled mobility device to maneuver through a set of paths and perform other daily activities (i.e. reaching to push a button). A series of questionnaires will also be completed.

The study visit will take place at one of the following locations:

  • Toronto Rehab-University Centre (550 University Ave.)
  • Toronto Rehab-Lyndhurst Centre (520 Sutherland Dr.)

Participants will receive an honorarium to compensate for their time and travel costs (e.g. taxi, parking, gas, etc.) associated with participating in this study.

For more information about the study, please contact Alison Novak at (416) 597-3422 extension 7878 or by email at alison.novak@uhn.ca

To Register:

 

 


Posted February 15, 2024


Posted February 10, 2024

Holland Bloorview: 

Research on: Discrimination, ableism and racism hurt but inclusion can heal: Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions

 


Posted February 10, 2024


Posted January 18, 2024