Diagnostic, Emergency & Anesthetic Precautions
The ILC is committed to providing world renown multidisciplinary specialists that have presented on their respective areas of expertise. Information shared in theses presentations can help you and your primary care provider to form questions to ask specialists or therapists on potential diagnoses, and/or types of treatments and therapies that can help you have an improved quality of life.
Follow the Conferences > Our Client & Community Support Membership provides you access to Past Conferences links to past Continued Medical Education accredited conference videos (2014-2023)
We recommend watching the videos and taking notes on the details being discussed that resonate with you and the symptoms you may be experiencing. Oftentimes, there are symptoms that are experienced, that are not always considered as related to a HCTD.
Most importantly, please never feel alone and if you have any questions, do not hesitate to reach out by contacting us.
Diagnostic Precautions:
Four articles with precautions to lumbar punctures in patients with EDS/HSD/HCTD – Noted complications of spontaneous CSF leaks, it is not necessary for diagnostic, it should be only used as a last resort.
Tips for searching key details within long articles, to find the info on “Lumbar Puncture or LP” in the articles below, when inside the link do “control F”, to see a little box on top right, type “Lumbar Puncture” or “LP” inside that box, click return, the words will be highlighted, to go to the next, click the arrow in that box.
Intracranial hypotension secondary to spinal CSF leak: diagnosis
Is Lumbar Puncture Contraindicated in Patients with Chiari I Malformation
Lumbar puncture or not? Somewhere to post MRI? – Ehlers-Danlos Syndromes
Spontaneous Intracranial Hypotension
Emergency & Anesthetic Precautions:
-Perioperative Management of Ehlers-Danlos Type III Syndrome Associated With Postural Orthostatic Tachycardia in Patients Undergoing General Anesthesia
