Community Membership

The ILC Foundation’s  Community Membership is to provide educational resources to help Canadians living with EDS, HSD, HCTD and Chronic Pain to create a balance between school, work, self-care and leisure activities. We know that living with Ehlers-Danlos Syndromes, its related conditions including chronic pain can be isolating and difficult to manage. The following resources are meant to assist members in their self-advocacy needs for access to care for themselves or for family members.

If you are an individual or are a care person of an individual that lives with Ehlers Danlos Syndromes, Hypermobility Spectrum Disorder, Heritable Connective Tissue Disorders and/or Chronic Pain, become an Individual Member and be part of this cause.

Please email: Jacqueline@theilcfoundation.org to sign up for Membership.


Membership Benefits

  • Opportunities to participate in healthcare education programs i.e.: Wellness Support Program with university coop students. For more information or to Register Here
  • Access to our Virtual Support Groups.
  • Exclusive access to our on-line portal for resources, forms and handouts as well as access to information about Chronic Pain, Ehlers-Danlos Syndromes (EDS) and Heritable Connective Tissue Disorders (HCTD) and information about clinical, scientific and patient-directed research
  • Non-exclusive educational resources through our annual conference YouTube video presentation library
  • Non-exclusive Recreation Therapy Resources
  • A 10% discount at Shoppers Home Health
  • A 10% discount on products purchased at Digisplint Inc.
  • A 10% discount on products purchased at ThriveTape
  • Opportunities to participate in research studies to improve healthcare delivery and to find cures
  • As funds allow, 50% discount on resources i.e.: Book Disjointed: Navigating the Diagnosis and Management of EDS/HSD
  • Subsidized registration fees for conferences
  • Free subscription to Chronically Simple Health Management APP
  • Be part of an important movement that gives HOPE!

Please email: Jacqueline@theilcfoundation.org to register as a community member.