Living Well With EDS Program

The ILC EDS Living Well With EDS Program is to provide educational resources to help Canadians living with EDS, HSD, HCTD and Chronic Pain to create a balance between school, work, self-care and leisure activities.

We know that living with Ehlers-Danlos Syndromes, its related conditions including chronic pain can be isolating and difficult to manage. The following resources are meant to assist members in their self-advocacy needs for access to care for themselves or for family members. We encourage individuals to discuss these resources with their medical team.

This booklet Living Well with EDS Booklet was created by Occupational Therapy Student’s from McMaster University, with support from Nicoleta Woinarosky, our Health Resource Consultant, and individuals with lived experiences- our Wellness Ambassadors. Download your copy which includes forms and templates, activity sheets and helpful links. Living Well With EDS Booklet 

We would also like to share a safety information sheet related to Grab Bars: Grab Bars Infographic

Also, please look at booking a Wellness Session for additional resources or participating in our Virtual Support Group.