What is EDS?
Ehlers-Danlos Syndromes (EDS) are a group of rare inherited conditions that affect connective tissue.
Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones.
There are several types of EDS that may share some symptoms.
These include:
- an increased range of joint movement (joint hypermobility)
- stretchy skin
- fragile skin that breaks or bruises easily
The different types of EDS are caused by faults in certain genes that make connective tissue weaker.
EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling. Some of the rare, severe types can be life threatening. For more information, Wiley On-Line Library has open access journals that provide great information and education. These Journal Articles are available here.
Hypermobile EDS (hEDS)
90 % of persons living with EDS have hEDS. With hEDS may have:
- joint hypermobility
- loose, unstable joints that dislocate easily
- joint pain and clicking joints
- extreme tiredness (fatigue)
- skin that bruises easily
- digestive problems, such as heartburn and constipation
- dizziness and an increased heart rate after standing up
- problems with internal organs, such as mitral valve prolapse or organ prolapse
- problems with bladder control (stress incontinence)
Currently, there are no tests to confirm whether someone has hEDS.
The diagnosis is made based on a person’s medical history and a physical examination.
Diagnostic checklist for doctors across all disciplines to diagnose EDS Download (PDF)
For support or further information, consider booking a Wellness Session
Page last reviewed: April, 2021
