The ILC Annual Webinars and Conferences

Target Audience:

Recognize and identify the illness clusters associated with Ehlers-Danlos Syndrome (EDS) and other Heritable Disorders of Connective Tissue.
Construct a practical approach for office-based screening of individuals with EDS with co-existent Dysautonomia, Gastrointestinal Dysmotility, Mast Cell Disorders, and neurological impairment caused by Cervical Cranial Instability (CCI), Atlanto-Axial Instability (AAI), Chiari Malformation, Tethered Cord, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), spinal fluid leaks, and Spontaneous Intercranial Hypotension (SIH).
Describe the best-evidence informed approach for management of multisystemic manifestations in Ehlers-Danlos Syndrome and other Heritable Disorders of Connective Tissue.
Express compassion and empathy in healthcare delivery to develop living patient/physician partnerships for improved quality of life.
In patients with neurological impairment caused by CCI, AAI, Chiari Malformation, Tethered Cord, ME, CFS, spinal fluid leaks, and SIH, understanding and expanding knowledge about diagnostic criteria and treatment of the spine, and the predisposing factors linked with these disorders such as EDS.
Obtaining resources regarding treatment and tools to manage symptoms and pain to improve quality of life.

At the end of this learning activity the learners will be able to:

Recognize and identify the illness clusters associated with EDS and other heritable disorders of connective tissue; and will obtain resources regarding treatment and tools to manage symptoms to improve quality of life.
Construct a practical approach for the office-based screening of individuals with EDS with comorbid conditions of hypermobility, Chronic Pain, Dysautonomia, Gastrointestinal Dysmotility, Mast Cell Activation, ME/CFS, and associated neurological manifestations in Atlanto-Axial Instability, Cervical Cranial Instability, Chiari Malformation, Tethered Cord, spinal fluid leaks, and Spontaneous Intracranial Hypotension.
Describe the best-evidence informed approach for management of multi-systemic manifestations in EDS and other heritable disorders of connective tissue while expressing compassion and empathy in healthcare delivery to develop living patient/physician partnerships for improved quality of life.