The Canadian Ehlers Danlos Syndromes Conference 2022 – A Lifetime of Learning

Medical Presentations

The Canadian Ehlers Danlos Syndromes Conference 2022 Video Presentations – A Lifetime of Learning

Welcome & Opening Remarks, Jacqueline Raposo, Interim Executive Director, TheILC Foundation 

Dr. Norris and Dr. Gensemer’s presentations were live so there are no videos available.

Dr. Russell Norris, PhD, The Norris Lab – Keynote Speaker, and Dr. Cortney Gensemer, PhD, patient presenter

Talk Title: Genetic Updates in Hypermobility EDS Question and Answer session

Dr. Alain Moreau, PhD and Catherine Sones, patient presenter

Talk title: Advancing Myalgic Encephalomyelitis Research to Transform Health Care: Challenges and Opportunities

 

Dr. Virginia McEwen, MD, CFPC, Pain Medicine Consultant and Beckie Bilcowski, patient presenter

Talk title: Mast Cell Activation Syndrome – Pain and Neurological Manifestations

Dr. Bryan MacLeod, MD, Pain Consultant and Lisa Kokanie, patient presenter

Talk title: Speaking to the Challenges of Chronic Disease from Patient and Healthcare Perspectives – Recognizing Signs of Burnout

Closing Remarks and a look forward to the 2023 conference series, Jacqueline Raposo

Questions and conversations from our livestream chat: