2nd Annual Conference

Presented by:

McMaster U logoILC Logo

Toronto Airport Marriott Hotel
901 Dixon Rd, Toronto, ON

November 1st – 2nd, 2014



  1. To review the current evidence in the diagnosis and management of Ehlers-Danlos Syndrome
  2. To understand the implications, indications and interpretation of diagnostic tools for Ehlers-Danlos Syndrome such as specific blood work, genetic testing, imaging, cardiac and neurological tests, etc.
  3. To incorporate a practical approach for the comprehensive management and follow up of patients with Ehlers-Danlos Syndrome in the family physician and specialist’s practices
  4. To consolidate a network of physician and allied professional with interest in difficult to diagnosis diseases including Ehlers-Danlos Syndrome


GP’s, Internists, Cardiologists, Pain Specialists, Neurologists, Neurosurgeons, Neuroradiologists, Gastroenterologists, Geneticists, Hematologists, Urologists, Immunologists, Allergists, Chiropodists, Orthopedics, Nurses, Students & Residents as well as Allied Health Professionals.


  • Dr. Norman Buckley, MD, FRCPC, Professor of Anaesthesia, McMaster University
  • Dr. Juan Guzman, MD, MSc, FRCPC, Assistant Professor of Medicine, McMaster University
  • Dr. Kristianna Martiniuk, MD, CFPC, Family Medicine
  • Christina Pridmore, Registered Kinesiologist, Osteopathy
  • Sandy Smeenk, Founder and Executive Director, The ILC Charitable Foundation, Oakville, ON


  • Dr. Clair Francomano, MD, Clinical Genetics, Greater Baltimore Medical Center, Baltimore, MD, USA
  • Dr. Allan Gordon (& Howard Meng), MD, Neurology, Director, Wasser Pain Management Center, Mount Sinai Hospital, University of Toronto, Toronto, ON
  • Dr. Juan Guzman MD, Internal Medicine, Cardiology, POTS & Dysautonomia, McMaster University, Hamilton, ON
  • Dr. Fraser Henderson, MD, Neurosurgery, Metropolitan Neurosurgery Group, Chevy Chase, MD, USA
  • Dr. Petra Klinge, MD, PhD, Neurosurgery, The Warren Alpert Medical School of Brown, Providence, RI, USA
  • TBC: Neuroradiologist
  • Dr. Roberto Mendoza-Londono, MD, Paediatrics and Molecular Genetics, Hospital for Sick Children, University of Toronto, Toronto, ON.
  • Dr. Peter Rowe, MD, Adolescent Health, Johns Hopkins Hospital, Baltimore, MD, USA
  • Dr. Peter Vadas, MD, Allergy and Immunology, St. Michaels Hospital, University of Toronto, Toronto, ON

The ILC Charitable Foundation
Phone: 416-822-3494
Email: Sandy@theilcfoundation.org
Website: www.theilcfoundation.org

  • Ehlers Danlos Division

    Ehlers Danlos Division of the ILC

    To inspire hope and contribute to the health and well-being of children and individuals living with Ehlers Danlos Syndrome (EDS) by providing a care model of health promotion and knowledge sharing partnerships through a family centred, awareness and education resource network.

  • Upcoming Events

    1. Uptown Hair & Spa Charity Cut-a-Thon

      June 10, 2018 @ 11:00 am - 2:00 pm
    2. Teletime Charity Classic Golf Tournament

      September 4, 2018
    3. ILC 6th Annual Ehlers Danlos & Chronic Pain Conference

      November 2, 2018 - November 3, 2018
The ILC Foundation

The ILC Foundation