Improving Lives of the Community (The ILC) living with Ehlers-Danlos Syndromes.

The ILC Foundation funds the development and implementation of support service programs at the community level in partnership with academia in healthcare. See details about our programs under the Ehlers-Danlos Syndromes tab.

As Canada’s only registered charity focused on EDS, The ILC has developed and implemented the strategies of care at the community level. We are committed to keeping our clients and families informed about initiatives that will improve their access to care. We host an annual CME accredited multidisciplinary healthcare education and patient learning conference, where international specialists are invited to present on their respective areas of expertise to advance understanding of EDS and comorbid conditions.