Your Vote / Your PatientVoice National Pain Week – November 5-11, 2017

Your Vote / Your PatientVoice
National Pain Week – November 5-11, 2017

The Government has invited “Your Vote” on issues of importance to you: https://commonground.ideascale.com/

Register and log in to state your vote to influence change

Whether you are a Patient, family member, care provider or an Allied Health or Healthcare professional, it is critically important that a strong PatientVoice is heard.

Write your own priority issue or use the following:
“Access to Chronic Pain Management including Life Saving and Quality of Life Giving neurosurgeries for rare diseases.”

Why this is important:
Whether a person lives with Chronic Pain from a hereditary condition like
EhlersDanlos Syndrome and either of its comorbid conditions where life-saving treatments and quality of life giving surgeries may be required, or if they live with acquired Chronic Pain, as a disease in its own right, there are gaps in access to care that go well beyond surgical treatments.

The federal government is not recognizing chronic pain as a national health priority, despite the prevalence and the Opioid Crisis, which has in effect railroaded the entire message about mental health associated to chronic pain and dependency for quality of life, as opposed to their focus on addictions.

People Of All Ages Are Suffering and WE must GIVE VOICE to get Chronic Pain and rare conditions like EDS on the government agenda as a national priority!

  • Health Canada Calendar of Health Promotion Days for 2017, and in Nov. there is no mention of Pain:
    http://www.hc-sc.gc.ca/ahc-asc/calend/index-eng.php
  • In 2015-13 listed in Nov. the National Pain Awareness Week:
    http://www.hc-sc.gc.ca/ahc-asc/calend/index-eng.php

Stats: 1 in 5 Canadians suffer from chronic pain, or 20% of the population. Please see below Managing pain by proper opioid prescribing is now in danger.

“Dr. David Williams, Ontario Chief Medical Officer of Health, gave a talk later that day stating that in Ontario prescribed opioids were the real problem. This information was inaccurate, and unfortunately resulted in an unprecedented crackdown by the Ontario College of Physicians and Surgeons on 84 Ontario pain physicians found to have been prescribing higher doses of opioids …They will do nothing to stop the overdose deaths and will not curb the opioid epidemic. And these actions have already had a very negative impact on chronic pain patients…There have been reports of desperate patients trapped under the new, tougher prescribing policies, and even reports of a few suicides …One in five Canadians suffers from chronic pain – 20 per cent of the population. Half of these, that is 10 per cent of all, have pain of such severity that they cannot work, play or sleep much. The cost to society of chronic pain equals that of cancer, heart disease and AIDS/HIV combined.”
http://ottawacitizen.com/…/thompson-managing-pain-by-proper…

Write your own priority issue or use the following:
“Access to Chronic Pain Management including Life Saving and Quality of Life Giving neurosurgeries for rare diseases.”

Thank you!
The ILC Team

Photo inserts from The ILC EDS and Chronic Pain Learning Conference November 4-5, 2017, where the combined Patient Voice and Allied Health and Healthcare Specialist presentations brought improved understanding. Left to right are conference attendees with PatientVoice presenters: Olivia Smeenk, Brooklyn Mills, Chris Norris, Dennis Livingston

 

  • 2017 Conference Videos and presentation documents are now available here
  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact
    Sandy@theilcfoundation.org

  • Research Projects

  • National Pain Strategy

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  • Upcoming Events

    1. Halifax Support Group Meeting

      December 10, 2017 @ 10:00 am - 12:00 pm
The ILC Foundation

The ILC Foundation