Articles related to #eds

Speaker Bios

Dr. Svetlana Blitshteyn   Dr. Svetlana Blitshteyn is the Director and Founder of Dysautonomia Clinic, where she provides consultations for patients with neurologic and autonomic disorders. She is the Clinical Associate Professor of Neurology at the University at Buffalo Jacobs School of Medicine and Biomedical Sciences. Dr. Blitshteyn completed her neurology training at Mayo Clinic […]

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The ILC EDS 2023 Virtual Conference Series: June 27th Webinar

Welcome to our 2023 Conference: Fitting the Pieces Together & the 10% Rule Establishing a Road Map to Overcome Barriers to EDS Care | Dr. Jordan Jones & Dr. William Black Q&A with Dr. Jones and Dr. Black | Establishing a Road Map to Overcome Barriers to EDS Care   Building your Care Toolkit with […]

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Virtual Support Groups

Virtual Support Groups for those with EDS/HSD Offering a safe space to share the challenges & victories of living with EDS/chronic illness.     These support groups do not intend to replace individual professional care; a counsellor with lived experience of EDS/chronic illness will facilitate. Advanced registration for each session is required: a link will be […]

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What is EDS?

Ehlers-Danlos Syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones. There are several types of EDS that may share some symptoms. These include: an increased range of joint movement (joint hypermobility) stretchy skin fragile skin that breaks or […]

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2017 EDS International Classification

In the last decade, growing attention has been placed on joint hypermobility and related disorders. The new nosology for the Ehlers-Danlos syndromes (EDS), identifies 13 different types of EDS, and highlights the need for an updated and more reliable criteria. For the first time management and care guidelines have also been produced for the co-morbidities […]

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