ILC in the Media
EDS & ILC on CBC Radio
Sandy Smeenk, Executive Director of ILC met with two #EDS families in Sherbrook, Quebec and worked to secure a CBC reporter to cover a story about the magnitude of problem #EDS families face when best practices do not exist for the diagnosis, treatment and care of this chronic pain disease. CBC Radio aired their two-part story about #Ehlers-Danlos Syndrome on February 27th & 28th, 2014. It features Genetic Councellor Dr. Gail Ouellette, #Dr. France-Valerie Roy who also lives with EDS and two other families.
Please feel free to contact the ILC Foundation for immediate, personalized information. The communications contact at the Foundation is:
Sandy Smeenk, Executive Director at email@example.com
The ILC Foundation is able to provide you with press kits which include quick links to basic information about the ILC Foundation, a layperson’s glossary, basic fact sheets and information about the ILC Foundation.
The ILC Foundation will also from time to time release press statements about activities and events.