ILC in the Media

Global Toronto | Brantford teen with rare disease says OHIP won’t pay for surgery in U.S.

EDS & ILC on CBC Radio

Sandy Smeenk, Executive Director of ILC met with two #EDS families in Sherbrook, Quebec and worked to secure a CBC reporter to cover a story about the magnitude of problem #EDS families face when best practices do not exist for the diagnosis, treatment and care of this chronic pain disease. CBC Radio aired their two-part story about #Ehlers-Danlos Syndrome on February 27th & 28th, 2014. It features Genetic Councellor  Dr. Gail Ouellette, #Dr. France-Valerie Roy who also lives with EDS and two other families.

Part 1:

Part 2:


OHIP denies teen’s costly U.S. surgery for rare disorder

The ILC offer support and much needed hope to families living with chronic pain.

Media Professionals

Please feel free to contact the ILC Foundation for immediate, personalized information. The communications contact at the Foundation is:

Sandy Smeenk, Executive Director at
(416) 822-3494

The ILC Foundation is able to provide you with press kits which include quick links to basic information about the ILC Foundation, a layperson’s glossary, basic fact sheets and information about the ILC Foundation.

The ILC Foundation will also from time to time release press statements about activities and events.

  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact

  • Research Projects

  • National Pain Strategy

  • Recent Articles

  • Upcoming Events

    1. Uptown Hair & Spa Charity Cut-a-Thon

      June 10, 2018 @ 11:00 am - 2:00 pm
    2. Teletime Charity Classic Golf Tournament

      September 4, 2018
    3. ILC 6th Annual Ehlers Danlos & Chronic Pain Conference

      November 2, 2018 - November 3, 2018
The ILC Foundation

The ILC Foundation