Publications and Articles

Living Well With EDS Program

The ILC EDS Living Well With EDS Program is to provide educational resources to help Canadians living with EDS, HSD, HCTD and Chronic Pain to create a balance between school, work, self-care and leisure activities.   We know that living with Ehlers-Danlos Syndromes, its related conditions including chronic pain can be isolating and difficult to […]

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Walk’n Wheel-a-thon

Funds raised this year will support The ILC EDS educational programs: Canadian EDS medical conference. Wellness Sessions help people navigate the healthcare system and provide resources. Academic partnership with Occupational Therapy co-op students of McMaster University School of Rehabilitation Sciences. Research to find cures. We invite you to join us at one of the existing EDS […]

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Related Conditions

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For Health Care Professionals

Non-Profit Organizations / Researchers Resources / Knowledge Sharing For Non-Profit Organizations, Scientists, Researchers and Healthcare Professionals.       As an Affiliate Member, The ILC will: Provide scientists, researchers and healthcare professionals with administrative time and support in the review and writing of Letters of Support (LOS) for grants you may be applying for; Will […]

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Academic & Research Partnerships

Academic Partnerships The ILC is honoured to be working in an official partnership with The McMaster Masters of Occupational Therapy program by providing clinical Coop Student Placements to broaden the understanding of needs in the Ehlers-Danlos Syndromes (EDS) patient population. Through the lens of EDS, healthcare students are gaining a deeper understanding of what Chronic […]

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Your Experience Working with Occupational Therapy

Please Join us on Friday February 23rd at 1 pm EST for a conversation about your experience working with Occupational Therapists and other healthcare professionals.

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EDS & Hand Function

Join us on Wednesday, February 21st at 1 pm EST for a conversation about how EDS impacts your hand function and some of the tools and techniques you can use to manage these challenges.

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Speaker Bios

Dr. Svetlana Blitshteyn   Dr. Svetlana Blitshteyn is the Director and Founder of Dysautonomia Clinic, where she provides consultations for patients with neurologic and autonomic disorders. She is the Clinical Associate Professor of Neurology at the University at Buffalo Jacobs School of Medicine and Biomedical Sciences. Dr. Blitshteyn completed her neurology training at Mayo Clinic […]

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The ILC EDS 2023 Virtual Conference Series: June 27th Webinar

Welcome to our 2023 Conference: Fitting the Pieces Together & the 10% Rule Establishing a Road Map to Overcome Barriers to EDS Care | Dr. Jordan Jones & Dr. William Black Q&A with Dr. Jones and Dr. Black | Establishing a Road Map to Overcome Barriers to EDS Care   Building your Care Toolkit with […]

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Virtual Support Groups

Virtual Support Groups for those with EDS/HSD Offering a safe space to share the challenges & victories of living with EDS/chronic illness.     These support groups do not intend to replace individual professional care; a counsellor with lived experience of EDS/chronic illness will facilitate. Advanced registration for each session is required: a link will be […]

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The ILC EDS Walk’n Wheel-a-Thon 2023

The ILC EDS Toronto Walk’n Wheel-a-Thon – 2023 SUNDAY MAY 28, 2023 Toronto Location: Martin Goodman Trail – starting point is at the foot of the Roncesvalles Pedestrian Bridge in the Sunnyside neighborhood of Toronto, directly beside the Palais Royale at 1601 Lakeshore Blvd. West. Walk Start Time: 10:00 AM (please arrive by 9:30 AM […]

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The ILC EDS 2023 Virtual Conference Series: Women’s Health April 25th

The Canadian Ehlers-Danlos Syndromes 2023 virtual Conference series: Women’s Healthcare and Management of Weak Connective Tissue in EDS A welcome to our 2023 Conference:Women’s Health – Care & Management of Weak Connective Tissue in EDS Nelly Faghani, RPT Talk Title: Pelvic Health Physiotherapy in EDS & HDS Dr. Ahmad Hasan, Resident Physician at University of […]

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The Canadian Ehlers Danlos Syndromes Conference 2022 – A Lifetime of Learning

Presentation videos from The ILC Ninth Annual Conference.

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2021: The ILC Annual Collaborative Webinar

The ILC Annual Collaborative Webinar on Tuesday August 31st, was a multidisciplinary event hosted with Apollo Cannabis Clinics. This webinar described the best-evidence informed approach for pain and symptom management of multi-systemic manifestations in Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorder and other Heritable Disorders of Connective Tissue.  Participants were shown a practical approach for office-based screening […]

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Pain Resources

Listing of several pain associations and clinics, resources, research and helpful links.

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2020: The ILC Eighth Annual Conference

Presentation videos from The ILC Eighth Annual Conference in partnership with Spinal CSF Leak Canada

Pain – Shedding Light on Inequities of Health

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The ILC Research Program

The ILC Charitable Foundation seeks your donation in support of its aim to introduce a new Postdoctoral Fellowship Competition to commemorate its 10th anniversary with a funding campaign of up to $50,000/year

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Crisis Lines & Mental Health

If you need someone to talk to, or if someone close to you does, there are many resources available to help.

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2019: The ILC Seventh Annual Conference

Presentation videos from The ILC Seventh Annual Conference in partnership with SickKids

Linking hypermobility pain disorders with their multi-systemic comorbidities

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Your Questions Answered: Conference 2019

Dr. Pradeep Chopra, Dr. Andrew Maxwell and Dr. Scott Walsh answer questions.

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CSF Flow at Niagara Falls

The ILC was pleased to be a community sponsor through its special projects initiatives with the Column of Hope at CSF Flow at Niagara Falls

Chiari, Syringomyelia and EDS
June 26 – 28, 2019, Niagara Falls, NY

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Joint Hypermobility Syndrome or Hypermobility Spectrum Disorder

Hypermobility means your joints are more flexible than other people’s (you may think of yourself as being double jointed). When this causes pain, it might be Joint Hypermobility Syndrome or Hypermobility Spectrum Disorder. See a GP if you: often get pain or stiffness in your joints or muscles keep getting sprains and strains keep dislocating […]

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What is Chronic Pain?

Chronic pain is pain that does not go away after three months.  Chronic pain can be persistent and varying in degrees of intensity or it can be intermittent (occurring on and off). Chronic pain can result from a known cause, such as a sport or work-related injury or surgery, such as inflamed joints.  Chronic Pain […]

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What are Heritable Connective Tissue Disorders?

There are more than 200 Heritable Connective Tissue Disorders that can affect the tissues between the cells of your body that give tissues form and strength. All of these diseases are directly related to problems in genes that are responsible for building connective tissues. The disorders are called “heritable,” because they are passed on from […]

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