The ILC Commitment to Education

Patient Information

The following .docx downloads are provided by The ILC.

EDS and Chronic Pain Handbook – Stay tuned, it’s under construction

What is Ehlers-Danlos Syndrome (EDS)?

What is Chronic Pain?

What is Gastroparesis?

What is Chiari Malformation (CM)?

What is Syringomyelia (SM)?

What is Dysautonomia?

Postural Orthostatic Tachycardia Syndrome (POTS)?

What is Tethered Cord Syndrome?

What is Adrenal Insufficiency?

What is Mast Cell Activation?

What is a Neurogenic Bladder?

What is Addison’s?

What is Arachnoiditis?

What is Chronic Fatigue Syndrome?

What is Thoracic Outlet Syndrome?

Parent Connection

Stay tuned, it’s under construction.

List of Helpful Items for Those Living with Pain

“Connecting as a patient population to share insights and helpful tips is an important step to finding ways to cope. Below is a list of resources and items that you may find helpful as you navigate a life of chronic pain. We wish you pain eased days and the best in your journey and mostly want you to know that you are not alone!” Sandy Smeenk

Laptop Laid Back Stand

Medipillow

Sacro-Ease Ergo Wedge

Healthy Back Wedge-Leg

Essential Oils for Pain 

Health Resources

Joint Hypermobility Handbook: A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome by Brad T. Tinkle, MD, PhD

Patient Rights

TIMELY ACCESS TO HEALTH CARE

Right to Privacy, Confidentiality and Accurate Health Records

The right to privacy and confidentiality includes i) having your medical and
financial records treated confidentially; ii) receiving a copy of your medical
records; and iii) where there are discrepancies in what is said in appointments, an
opportunity to review and discuss changes to accurately document.

FIND A PHYSICIAN

AB http://www.albertahealthservices.ca/info/Page13253.aspx

BC https://www.doctorsofbc.ca/resource-centre/find-doctor

SASK
https://www.saskatchewan.ca/residents/health/accessing-health-care-services/find-a-family-doctor-in-your-community

MAN https://www.gov.mb.ca/health/familydoctorfinder/register.html

ON https://www.ontario.ca/page/find-family-doctor-or-nurse-practitioner

QUE https://www.gov.mb.ca/health/familydoctorfinder/register.html

NS https://novascotia.ca/dhw/physicians/

NB https://www.nbms.nb.ca/patient-information/finding-a-family-doctor/

PEI http://www.healthpei.ca/index.php3?number=1046474&lang=E

NFLD http://www.familynavigator.ca/index.php/relocation/st._johns/st._johns_medical_care

NWT/YUKON http://www.candoctor.ca/northwest-territories–doctors.html
/ http://www.hss.gov.yk.ca/findadoctor.php

  • Chronic pain support for children, youth, and teens
  • Upcoming Events

    1. Halifax Support Group Meeting

      October 15, 2017 @ 10:00 am - 12:00 pm
    2. Simcoe/York Ehlers-Danlos Syndrome Peer Support Group Meeting

      October 21, 2017 @ 12:00 pm - 2:00 pm
    3. ILC 5th Annual Ehlers Danlos & Chronic Pain Conference

      November 4, 2017 - November 5, 2017
    4. Ontario Peer Support Meeting – Toronto, Ontario

      November 4, 2017 @ 12:00 pm - 3:00 pm
    5. Halifax Support Group Meeting

      November 12, 2017 @ 10:00 am - 12:00 pm
The ILC Foundation

The ILC Foundation