The ILC Canadian EDS Foundation (“The ILC”) provides a comprehensive range of family-centred support services to parents with children, youth and individuals with chronic pain and Ehlers Danlos Syndromes.  The ILC Online Resource Centre provides helpful tips, information and other resources offered by the ILC and the community.

The external resource links are provided for informational purposes only. The ILC is not responsible for the content, privacy policies and terms of use of websites to which we link. The websites listed are not a substitute for professional advice, diagnosis or treatment, provided by a qualified health-care provider.

The Ministry of Health and Long Term Care has accelerated the implementation of chronic pain and Ehlers Danlos Syndromes programs, which have been implemented in 2015 and 2016 respectively.  In the new OAP, children will receive a variety of services at varying levels of intensity based on the needs of each individual child.  Goals have been organized as meaningful, functional and responsive to the needs of each person, whether child, adolescent or adult, with the understanding that in some cases more research is needed for broader best evidence practices.

Our main services include:

  • Peer resource network
  • Service Navigation
  • Navigating health and physiotherapy care
  • Social Work Services
  • Assistive Devices Resource Service
  • Independent Living Program
  • Psychoeducational Services
  • Recreation Therapy
  • Special Services at Home
  • Specialty Clinics
  • Transitions Services
  • Ehlers Danlos Division

    Ehlers Danlos Division of the ILC

    To inspire hope and contribute to the health and well-being of children and individuals living with Ehlers Danlos Syndrome (EDS) by providing a care model of health promotion and knowledge sharing partnerships through a family centred, awareness and education resource network.

  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact

  • Research Projects

  • National Pain Strategy

  • Upcoming Events

    1. Teletime Charity Golf Classic

      September 5, 2017
    2. International Ehlers-Danlos Society Global Learning Conference

      September 7, 2017 - September 9, 2017
    3. Simcoe/York Ehlers-Danlos Syndrome Peer Support Group Meeting

      September 9, 2017 @ 12:00 pm - 3:00 pm
    4. Halifax Support Group Meeting

      September 17, 2017 @ 10:00 am - 12:00 pm
    5. Halifax Support Group Meeting

      October 15, 2017 @ 10:00 am - 12:00 pm
The ILC Foundation

The ILC Foundation