News

Recent announcements, media releases and event notifications from The ILC

Your Vote / Your PatientVoice National Pain Week – November 5-11, 2017

Your Vote / Your PatientVoice National Pain Week – November 5-11, 2017 The Government has invited “Your Vote” on issues of importance to you: https://commonground.ideascale.com/ Register and log in to state your vote to influence change Whether you are a Patient, family member, care provider or an Allied Health or Healthcare professional, it is critically important […]

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Focus Groups on Opioid Use in Ontario (August, 2017)

July 20th, 2017

News

The ILC Foundation would like to share this opportunity with you and would encourage you to pass it along to anyone from Ontario that you may know who is using Opioids to manage their chronic pain. The Ontario Drug Policy Research Network (ODPRN) are conducting a research initiative and are currently recruiting to conduct focus […]

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NATIONAL ABORIGINAL DAY – ILC MESSAGE OF HOPE

June 23rd, 2017

News

Chronic pain management and health care of Aboriginal peoples living in Canada is a serious concern where inequities are seen across the continuum of care. The ILC Foundation applaud proposed changes in policy development as it relates to their unique health care challenges defined in The Crisis of Chronic Disease among Aboriginal Peoples, by Dr. J. Reading […]

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New ODSP Medical Reviews Start April 2017

October 3rd, 2017

Industry News, Knowledge Base, News

The Ministry of Community and Social Services is putting in place a new medical review process that will be a big improvement for people on ODSP. Starting this month, all medical reviews will be done using the new process, which includes new forms and better decision-making. These changes are the result of many years of […]

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2017 EDS International Classification

In the last decade, growing attention has been placed on joint hypermobility and related disorders. The new nosology for the Ehlers-Danlos syndromes (EDS), identifies 13 different types of EDS, and highlights the need for an updated and more reliable criteria. For the first time management and care guidelines have also been produced for the co-morbidities […]

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New Ehlers Danlos Syndromes publications

March 17th, 2017

News

The Ehlers-Danlos Syndromes: Reports from the International Consortium on the Ehlers-Danlos Syndromes

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Rare Disease Connection

March 6th, 2017

News

Tammy Stadt of the ILC York/Simcoe EDS Support Group raises awareness at the Rare Disease Connection event that was hosted in Barrie City Hall Rotundra. The event was to connect Rare Diseases, give the opportunity to educate the community and medical professionals while offering connections for persons living with Rare Diseases. Link to news coverage […]

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Canadian Press Announcement for EDS Clinic – February 27, 2017

The ILC Charitable Foundation Ehlers Danlos Division team, including its medical advisers continues to work closely with the Ministry of Health, the Hospital for Sick Children and the University Health Network with the announcement of expanding clinics for people living with rare diseases and EDS. Link to article The ILC Charitable Foundation Ehlers Danlos Division […]

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Pain BC hosting Provincial Pain Summit, February 17-19

September 26th, 2017

News

From the Executive Director of Pain BC, Maria Hudspith From February 17-19, Pain BC will host the Provincial Pain Summit, with financial support from the Ministry of Health and WorkSafeBC. Are you: a person living with pain who’d like to contribute to the discussion? a clinician passionate about best practice approaches to chronic pain?  a policy maker with […]

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POTS syndrome is a medical condition doctors are only starting to recognize

September 26th, 2017

News

Up to 50,000 people in Canada may be suffering from this energy-sucking condition, says Dr. Juan Guzman.  

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  • 2017 Conference Videos and presentation documents are now available here
  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact
    Sandy@theilcfoundation.org

  • Research Projects

  • National Pain Strategy

  • Recent Articles

  • Upcoming Events

    1. Simcoe/York Ehlers-Danlos Syndrome Peer Support Group Meeting

      November 18, 2017 @ 12:00 pm - 3:00 pm
    2. Halifax Support Group Meeting

      December 10, 2017 @ 10:00 am - 12:00 pm
The ILC Foundation

The ILC Foundation