Knowledge Base / Resources

The ILC advocates to provide as complete a resouce network as possible but in no way intends the resources to be a full representation of available sources of support as we are continuously updating information.

EDS Clinic

The Ehlers-Danlos Syndrome (EDS) Program is a collaboration between University Health Network (UHN) and The Hospital for Sick Children (HSC) and focuses on clinical care, education, and research. This joint program provides a centralized approach in the diagnosis and management of EDS. http://www.uhn.ca/MCC/PatientsFamilies/Clinics_Tests/Ehlers-Danlos_Syndrome_Clinic

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Patient Commando

October 3rd, 2017

Products, Resources

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Patient Command Pharmacy – empowering patient choice.

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Bespoke RGK Wheelchairs

November 13th, 2017

Products, Resources

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BESPOKE (custom Made) RGK Wheelchairs in North America

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Community Based Groups

November 13th, 2017

Helpful Links, Resources

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EDS Canada, and more

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Registered Charities

October 2nd, 2017

Helpful Links, Resources

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Including The Ehlers Danlos Society, Chronic Pain Association of Canada, and many more

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Hospitals and Government Services

October 3rd, 2017

Helpful Links, Resources

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Sick Kids and more

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Education

November 15th, 2017

Patients, Resources

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The ILC Commitment to Education Patient Information The following .docx downloads are provided by The ILC. EDS and Chronic Pain Handbook – Stay tuned, it’s under construction What is Ehlers-Danlos Syndrome (EDS)? What is Chronic Pain? What is Gastroparesis? What is Chiari Malformation (CM)? What is Syringomyelia? What is Dysautonomia? Postural Orthostatic Tachycardia Syndrome (POTS)? […]

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Peer Support for Men

October 2nd, 2017

Patients, Resources, Support

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Men-Only Support Group  

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Become an Advocate

Your Elected Representative can help: Write a letter to your Provincial and Federal Representative to let them know your concerns about the challenges to receive pain management that includes having a family doctor that has diagnostic criteria and treatment plans.  You can include the following statement/statistics to validate your experience: “The ILC Charitable Foundation provide […]

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Montreal Children’s Hospital

The Montreal Children’s Hospital 1001 Boulevard Décarie Montréal, QC H4A 3J1 Main telephone: 514-412-4400

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  • 2017 Conference Videos and presentation documents are now available here
  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact
    Sandy@theilcfoundation.org

  • Research Projects

  • National Pain Strategy

  • Recent Articles

  • Upcoming Events

    1. Halifax Support Group Meeting

      December 10, 2017 @ 10:00 am - 12:00 pm
The ILC Foundation

The ILC Foundation