Knowledge Base

The ILC Knowledge Base is designed to provide a source of information and discussion for patients and families dealing with chronic pain diseases. It is also a resource of peer content for clinicians, practitioners and researchers on the latest advancements in EDS and other pain diseases.

EDS Clinic

The Ehlers-Danlos Syndrome (EDS) Program is a collaboration between University Health Network (UHN) and The Hospital for Sick Children (HSC) and focuses on clinical care, education, and research. This joint program provides a centralized approach in the diagnosis and management of EDS. http://www.uhn.ca/MCC/PatientsFamilies/Clinics_Tests/Ehlers-Danlos_Syndrome_Clinic

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The ILC Research Division

November 13th, 2017

Knowledge Base, Research

The ILC are working with a multidisciplinary team of medical professionals from across Canada and internationally, to improve understanding of difficult to diagnose chronic pain diseases. The outcomes of this work will help to bridge gaps in evidence based diagnostic and treatment criteria of a broad group of chronic pain diseases, utilizing connective tissue disorder […]

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About the ILC EDS Division

November 18th, 2017

Ehlers-Danlos Syndrome, Knowledge Base

The ILC Foundation began because of the gaps in awareness and care for EDS. Through our Board of Trustees, we are aligned with the Ehlers-Danlos Syndrome National Foundation (www.ednf.org) in the United States, where a broad understanding is shared through collaborations including ILC’s Difficult to Diagnose Disease Program for the development of best practices for […]

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Your Vote / Your PatientVoice National Pain Week – November 5-11, 2017

Your Vote / Your PatientVoice National Pain Week – November 5-11, 2017 The Government has invited “Your Vote” on issues of importance to you: https://commonground.ideascale.com/ Register and log in to state your vote to influence change Whether you are a Patient, family member, care provider or an Allied Health or Healthcare professional, it is critically important […]

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ILC Collaborative Portal

Visit the ILC Collaborative Portal to connect with patients, parents, caregivers and share your stories and experiences. Professionals can connect with like minded peers who will provide a source of relevant, peer ranked information, and engaging collaboration.

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Other Presentations

October 3rd, 2017

Knowledge Base, Presentations

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Chiari Malformation Press Interview — ISNVD Dr. Diana Driscoll The Driscoll Theory – Layman’s Version Section 1 Surviving and Thriving with Chronic Illness – Follow the link for more information and to download The Driscoll Theory – the Cause of POTS in the EDS Patient   Dysautonomia General anaesthesia in eight patients with familial dysautonomia Press Interview […]

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ILC Publications

ILC Funding Model ILC Funding Model (DOC) ILC Programs ILC Programs (DOC) ILC Vision of Possibilities ILC Vision of Possibilities (PPT)

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Ehlers-Danlos syndrome: patients denounce how Quebec lags behind Ontario and ask the Minister Gaétan Barrette to intervene to stop errors in diagnosis

MONTREAL, March 21, 2017 /CNW Telbec/ – On the initiative of the Regroupement québécois des maladies orphelines (Quebec Coalition of Orphan Diseases), people affected by the Ehlers-Danlos syndrome assembled for a press conference to testify about the errors and difficulties they face with the medical management of their condition. Ehlers-Danlos syndrome designates a group of hereditary diseases of […]

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Patient Commando

October 3rd, 2017

Products, Resources

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Patient Command Pharmacy – empowering patient choice.

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Bespoke RGK Wheelchairs

November 13th, 2017

Products, Resources

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BESPOKE (custom Made) RGK Wheelchairs in North America

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  • 2017 Conference Videos and presentation documents are now available here
  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact
    Sandy@theilcfoundation.org

  • Research Projects

  • National Pain Strategy

  • Recent Articles

  • Upcoming Events

    1. Halifax Support Group Meeting

      December 10, 2017 @ 10:00 am - 12:00 pm
The ILC Foundation

The ILC Foundation