ILC Community

The ILC community is designed to provide a source of information and discussion for patients and families dealing with chronic pain diseases. It is also a resource of peer content for clinicians, practitioners and researchers on the latest advancements in EDS and other pain diseases.

Other Presentations

October 3rd, 2017

ILC Community, Presentations

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Chiari Malformation Press Interview — ISNVD Dr. Diana Driscoll The Driscoll Theory – Layman’s Version Section 1 Surviving and Thriving with Chronic Illness – Follow the link for more information and to download The Driscoll Theory – the Cause of POTS in the EDS Patient   Dysautonomia General anaesthesia in eight patients with familial dysautonomia Press Interview […]

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ILC Publications

October 3rd, 2017

ILC Community, Presentations, Programs

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ILC Funding Model ILC Funding Model (DOC) ILC Programs ILC Programs (DOC) ILC Vision of Possibilities ILC Vision of Possibilities (PPT)

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Ehlers-Danlos syndrome: patients denounce how Quebec lags behind Ontario and ask the Minister Gaétan Barrette to intervene to stop errors in diagnosis

MONTREAL, March 21, 2017 /CNW Telbec/ – On the initiative of the Regroupement québécois des maladies orphelines (Quebec Coalition of Orphan Diseases), people affected by the Ehlers-Danlos syndrome assembled for a press conference to testify about the errors and difficulties they face with the medical management of their condition. Ehlers-Danlos syndrome designates a group of hereditary diseases of […]

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Children & EDS

 US National Library of Medicine http://www.nlm.nih.gov/  National Institutes of Health http://www.nih.gov/  North America Journal of Medical Science National Institutes of Health http://www.nih.gov/  PubMed AN EDUCATORS GUIDE Meeting the Needs of the Ehlers-Danlos Child / A PARENTS GUIDE Helping Your Child Succeed at School https://ehlers-danlos.com/wp-content/uploads/Educator-Parent-Guide-2016.pdf Unexplained facial scar: Child abuse or Ehlers-Danlos syndrome http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4264297/ Quality of life prediction […]

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EDS ILC Presentations

Conference Board of Canada – Access to Affordable Medications: Conference Board of Canada http://www.conferenceboard.ca/Libraries/CONF_PRES_PUBLIC/17-0064_a3_smeenk.sflb McMaster & ILC EDS Conferences CAPHC 2012 CAPA 2012

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Services

October 3rd, 2017

Ehlers-Danlos Syndrome, ILC Community

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The ILC provides a comprehensive range of family-centred support services to parents with children, youth and individuals with chronic pain and Ehlers Danlos Syndromes.  The ILC Online Resource Centre provides helpful tips, information and other resources offered by the ILC and the community. The external resource links are provided for informational purposes only. The ILC is not responsible […]

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EDS Ontario’s Special Needs Strategy

The Ministries of Children and Youth Services, Community and Social Services, Health and Long-Term Care, and Education are implementing a strategy to improve services for children/youth with special needs in Ontario. The Special Needs Strategy will support the vision of “An Ontario where children and youth with special needs get the timely and effective services they need to participate fully at home, at […]

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New ODSP Medical Reviews Start April 2017

October 3rd, 2017

ILC Community, Industry News, News

The Ministry of Community and Social Services is putting in place a new medical review process that will be a big improvement for people on ODSP. Starting this month, all medical reviews will be done using the new process, which includes new forms and better decision-making. These changes are the result of many years of […]

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2017 EDS International Classification

In the last decade, growing attention has been placed on joint hypermobility and related disorders. The new nosology for the Ehlers-Danlos syndromes (EDS), identifies 13 different types of EDS, and highlights the need for an updated and more reliable criteria. For the first time management and care guidelines have also been produced for the co-morbidities […]

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2017 EDS International Classification

In the last decade, growing attention has been placed on joint hypermobility and related disorders. The new nosology for the Ehlers-Danlos syndromes (EDS), identifies 13 different types of EDS, and highlights the need for an updated and more reliable criteria. For the first time management and care guidelines have also been produced for the co-morbidities […]

Read more

  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact
    Sandy@theilcfoundation.org

  • Research Projects

  • National Pain Strategy

  • Recent Articles

  • Upcoming Events

    1. Simcoe/York Ehlers-Danlos Syndrome Peer Support Group Meeting

      October 21, 2017 @ 12:00 pm - 2:00 pm
    2. ILC 5th Annual Ehlers Danlos & Chronic Pain Conference

      November 4, 2017 - November 5, 2017
    3. Ontario Peer Support Meeting – Toronto, Ontario

      November 4, 2017 @ 12:00 pm - 3:00 pm
The ILC Foundation

The ILC Foundation