Board of Directors

Sandy Smeenk


Sandy Smeenk is the President of The ILC Chronic Pain and Ehlers Danlos Charitable Foundation (“The ILC”). The ILC has a dedicated focus to children and youth in its community based support programs for individuals living with Chronic Pain and hereditary connective tissue disorder Ehlers Danlos Syndromes (EDS).  Sandy has led substantive awareness and education initiatives, including hosting annual continued medical education accredited conferences (2013 to present), where multidisciplinary healthcare professionals, allied-healthcare providers and patients come together to share lived experiences and learn about difficult to diagnose and treat EDS and Chronic Pain.  The positive outcomes influenced directors of pain centers to revisit patient files to confirm diagnosis and care plans, where at one center alone, an increase of 200% in EDS diagnosis was realized. The ILC’s Patient-Voice advocacy work has been pivotal in securing i) a child and adult ministry of health funded EDS clinic at the Hospital for Sick Children and Toronto General Hospital  and, ii) increased funding for Chronic Pain services and research through the Chronic Pain Network.

Janet Schwichtenberg


janetJanet Schwichtenberg is a Certified Professional  Accountant.  She received her Chartered Accountant designation in 1990 after graduating from the University of Waterloo with a Bachelor of Mathematics (Honours Cooperative Program) degree.  Janet worked for a multi-million dollar international distribution and financing company as Financial Manager and then Manager of Taxation.  In 2006, Janet left public accounting to work as a Sole Practitioner.    Her part-time practice includes bookkeeping, Financial Statements preparation, Personal and Corporate Taxation for Individuals and Owner Managed Businesses.  She volunteered for over 8 years as Treasurer and Bookkeeper for a local youth sports organization and for the last 5 years, as Treasurer for The ILC Foundation.  Janet lives in Oakville with her husband, Kerry and their four daughters.

Sarah Marriott


sarahSarah has been volunteering with the ILC Foundation since January 2015 in the capacity of Board Secretary. She is a Chartered Director and has prior experience in both charitable and corporate board roles.   Sarah enjoys contributing to worthy causes which are small but mighty and which facilitate immediate help and support for those in its mandate.  This is what drew her to the ILC; knowing that the organization has such driven and enthusiastic executives and board members which translates into results which are directly helping people and will continue to do so as changes are made locally and nationally.

Allan Gordon

B.A. (Psychology & Sociology), M.A. (Sociology), Director

 Allan GordonAllan Gordon’s interest in the ILC Foundation began with his wife, Nicoleta Woinarosky’s diagnosis, with Ehlers Danlos Syndrome (EDS), and the realization that the Foundation was the only Canadian organization providing direct advice and support to children, youth and adults with rare diseases that are difficult to diagnose and treat. While receiving much-appreciated advice on diagnosis and treatment options for EDS, Allan expressed his gratitude by promoting the Difficult to Diagnose Disease (DDD) Program with the Public Health Agency of Canada, and by reviewing and providing feedback on the DDD Program and other Foundation documents, from his perspective as a former Health Canada employee.Allan brings over 30 years of experience in both the public and private sectors, in the areas of management, social research and university teaching. For 15 years he held management positions with Health Canada, supervising policy and research analysts who identified and prioritized the department’s health information needs and prepared statistical reports including the biennial Healthy Canadians Reports released by the Health Minister. During this period he contributed to the re-organization of several divisions by preparing mission statements, goals and objectives, and engaged in all aspects of staffing (including recruitment, preparation of job descriptions and written exams, and oral interviews). Before advancing into management, Allan managed a large ($654,000) multi-year contract for the 1996 National Health Promotion Survey. As a private-sector consultant, he planned and conducted two national surveys. In both the public and private sectors he provided technical advice and support on a wide range of social research and evaluation projects (including social surveys, opinion polls and a magazine reader survey). He also taught Social Research Methods at Carleton University for two years. His knowledge and experience will be useful to the Board in the areas of governance, communication and research.

Susan Hawkins

Susan joined the ILC Board based on its dedicated focus to improving access to care for people with Ehlers-Danlos Syndrome (EDS) through Canadian medical education. Susan became interested in Ehlers Danlos Syndrome when her daughter was diagnosed in late 2012. Now that her daughter’s health has improved due to medical treatment in the US, Susan’s passion is to improve the medical treatments available in Canada. Susan works part-time at the family owned business, Canerector, which is a multi-divisional company in the metal fabrication sector. She has a BA in Economics and an MBA from Shulich Business School at York University as well as many years experience volunteering, fundraising and serving on other boards of directors.

Roger Lapworth

Roger LapworthMost notable is his past involvement with the Cruisers Sports for the Physically Disabled who support the Halton and Peel Regions, and more recently, as Director and Treasurer of Oakville based ILC Charitable Foundation, whose focus is to improve the lives of 20% of children and families living with chronic pain. Roger Lapworth completed his education in England in the field of financial management and audit, and immigrated to Canada in 1974.  He has held positions of vice president of finance and chief financial officer for local corporations for over 30 years. Since 1986, he has operated his own tax consulting business.  Roger has served for two terms as Oakville Town Councilor, is also an audio engineer and is the founder of the Retro Rock Lounge, a non-profit organization that supports amateur musicians within the arts community.  Roger joins the ILC Foundation as Director and Treasurer in recognition of the work being done to bridge gaps in care for children and families suffering with complex pain problems.  Roger has lived in Oakville since 1997.

Rebecca Mills

Rebecca Mills is co-founder of the ILC and is co-owner and Office Director of Oakville Laser Clinic & Spa, a very successful Cosmetic Medical Clinic in Oakville Ontario. Rebecca has been responsible for overseeing all aspects of the medical facility’s operations, including Sales, Marketing, Safety & Compliance, and Human Resources. Under her direction the clinic has received numerous awards and recognition for excellent service and productivity. With three surgeons, three Registered Nurses and three Estheticians, the clinic offers a wide range of Surgical, Cosmetic and Spa services. Rebecca has spent years seeking treatment for her daughter who suffers from chronic pain due to a genetic connective tissue disorder known as Ehlers-Danlos Syndrome (EDS). Rebecca attended the Rehabilitative Pain Clinic at the Mayo Clinic in Rochester Minnesota, with her daughter who went through an intensive multidisciplinary rehabilitation program to learn skills and was provided the tools to cope with the persistent pain she lives with. Rebecca and her husband Kris live in Oakville with their three children, Brooklyn, Brendan and Jeremy.

Bob Pattison

Director of Fund Development

Bob PattisonBob was born in Toronto and attended Humber College for Marketing Management. After beginning his finance career with Bank of America he was transferred to Vancouver for 7 years. He returned to Ontario with Transamerica Commercial Finance in 1984 and currently resides in Oakville. His experience spans over 30 years in senior executive positions in Commercial Distribution Finance. In his roles as Vice President, Sales at GE Capital, National Account Manager for Deutsche Bank, and General Manager, CIBC Finance Inc. he has gained a depth of experience and contacts which will enhance his efforts on behalf of The ILC Foundation. Bob has also organized fund raising events over the past 10 years for individuals in need as well as events for The Children’s Wish Foundation and recently for The ILC Foundation.

Peter Reinhardt

Peter Reinhardt, CMO of Wizz Marketing, a subsidiary of Saving MainStreet Inc., describes himself as a customer centric marketer. Past executive with Carlson Marketing, Peter brings tremendous insights on being customer focused, targeted in approach and the creation of purpose driven marketing solutions. His clients range from Fortune 500 companies to small independent retailers and artists.Peter has a big heart and receives tremendous satisfaction in giving back to the community as well as many individual groups that have asked for his help. “I feel so thankful to be surrounded by so many great people; giving back using my God given talents is a way to demonstrate my gratitude”. He has been very involved with The Meeting House, Kerr Street Ministries, Oakville’s Largest Rock’n Roll Party, the development of The ILC Foundation and numerous independent charitable initiatives.Peter lives in Oakville with his wife Pamela. They have three children who are spread out across the country, Matthew in BC, Nik and Kristina in Ontario.
  • Announcements

    ILC Centre of Excellence – Toronto Stay Tuned

    ILC Support and Accessibilities Centre specializing in EDS and related conditions that cause altered physical abilities – Stay Tuned

    For more information, contact

  • Research Projects

  • National Pain Strategy

  • Recent Articles

  • Upcoming Events

    1. Uptown Hair & Spa Charity Cut-a-Thon

      June 10, 2018 @ 11:00 am - 2:00 pm
    2. Teletime Charity Classic Golf Tournament

      September 4, 2018
    3. ILC 6th Annual Ehlers Danlos & Chronic Pain Conference

      November 2, 2018 - November 3, 2018
The ILC Foundation

The ILC Foundation