Hope in Our Future

The ILC and McMaster 4th Annual Conference
November 5, 2016

Elhers Danlos Syndrome: Chronic Pain – If You Can’t Connect The Issues Think Connective Tissues

Conference Schedule

Time

A minimum 25% Q&A and interactive learning provided

Who

8:00 REGISTRATION/BREAKFAST/NETWORKING All
8:30 WELCOME ILC
Patient Ambassador on Chronic Pain & EDS Ophira Calof
The ILC Impact & Update on EDS Centre in Toronto Dr. Roberto Mendoza, MD, Genetics, The Hospital for Sick Children
9:00 A manual therapy and exercise approach to the management of Ehlers Danlos Syndrome Christina Pridmore
9:30 Ehlers Danlos Syndrome: Genetics and multidisciplinary care Dr. Clair Francomano, MD, Clincial Genetics, Greater Baltimore Medical Center
10:00 Ehlers Danlos Syndrome and the Neurologist Dr. Allan Gordon, MD, Neurology & Pain Specialist, Mount Sinai Health Systems, Wasser Pain Centre
10:30 BREAK BREAK
10:45 Cervical spine imaging in connective tissue disorders Dr. Myles Koby, MD, Neuroradiology, Baltimore, Maryland
11:15 Neurological manifestations of Ehlers Danlos Syndrome:  Update and management principles Dr. James Rutka MD, Neurosurgery, Hospital for Sick Children, Editer and Chief Neursurgery Journal, ILC Medical Advisor
11:45 Pitfalls in the management of spinal disorders of Ehlers Danlos Syndrome Dr. Fraser Henderson, MD, Metropolitan Neurosurgery Group
12:15 LUNCH/NETWORKING LUNCH/NETWORKING
1:00 Patient Ambassador presentations: Steve Bedford, Lara Bloom, Billie Jo Bogden
1:15 Gastrointestinal manifestations in patients with Ehlers-Danlos Syndrome Dr. Louis Liu, MD, Gastroenterology, University Health Network
1:45 Ehlers Danlos Syndromes – Dermatologic features and issues Dr. Scott Walsh, MD, Dermatology, Sunnybrook Health Sciences Centre
2:15 Autonomic function impact in Ehlers Danlos Syndrome Dr. Juan Guzman, MD, Cardiology, Internal Medicine, Hamilton General Hospital, McMaster University
2:45 BREAK BREAK
3:00 – 5:00 Multidisciplinary Interactive Learning:  Applying what is learned to clinical practice Moderator:  Conference Co-Chairs Dr. Juan Guzman, Dr. Roberto Mendoza
3:00 – 5:00 Patient Program Breakout sessions: Parents & Caregivers; Youth; Adults
5:30 Medical Professional Dinner

Q&A WILL INCLUDE 7.5 MINUTES FOLLOWING EACH PRESENTATION / 35% OF TIME WILL BE DEDICATED TO MULTIDISCIPLINARY INTERACTIVE SCIENTIFIC PLENARY SESSION

Scientific Program

Target Audience:  Anesthesiology & Pain, Cardiologists, Family physicians, Geneticists, Immunology & Allergy, Internal Medicine, Neurologists, Neuroradiologists, Neurosurgeons, Occupational Therapists, Orthopedics, Pediatricians, Physiotherapists, Psychiatrists, Psychologists, Rheumatologists, Social Workers.

Overall Conference Learning Objectives

Academic:

  • To review the current evidence in the diagnosis and management of multi-system, connective tissue and chronic pain, Ehlers-Danlos Syndrome (EDS).
  • To recognize the implications, indications and interpretation of diagnostic tools for chronic pain, using EDS as a model of optimal care, such as specific blood work, genetic testing, imaging, cardiac and neurological tests, etc.
  • To incorporate a practical approach for the comprehensive management and follow up of patients with chronic pain and EDS in the family physician, physiotherapist and specialist practices.
  • To consolidate a network of medical professionals with an interest and expertise in chronic pain and chronic pain diseases including but not limited to EDS.

By the end of the 2016 Conference, delegates will be able to:

  • Describe up to date diagnostic criteria and management of Ehlers-Danlos Syndrome and chronic pain risk management.
  • Incorporate a practical evidence based approach to the optimal management of the chronic pain patient population to minimize the risk of doing too much of the wrong thing and not enough of the right thing.
  • Understand implications, indications and interpretation of common chronic pain diagnostic tools with EDS as a model of optimal care in this patient population.
  • Understand the fundamentals of evidence based healthcare concepts, skills and tools of pain management through patient/physician partnerships for improved quality of life
  • Discuss advances in the management of acute and chronic neurological and neurosurgical disorders relating to connective tissue disorders.
  • Discuss new findings in neurological and neurosurgical disorders.
  • Describe indications and implications in neurological care and/or neurosurgical techniques relating to connective tissue disorders.
  • Identify areas where there are gaps in learning (unperceived needs) not realized before attending the Conference and extend this professional learning after the Conference to improve care of patients.

This Group Learning program meets the certification criteria of the College of Family Physicians of Canada and has been certified by the McMaster University Continuing Health Sciences Program for up to 6.5 Mainpro+ credits.

This program was co-developed with McMaster University and was planned to achieve scientific integrity, objectivity and balance.

This activity is an Accredited Group Learning Activity (Section 1) as defined by the Maintenance of Certification program of The Royal College of Physicians and Surgeons of Canada and approved by McMaster University, Continuing Health Sciences Education Program for up to 6.5 MOC Section 1 hours.